What’s Going On With My Body

I had posted this on Facebook, but of course it’s now a week later so is impossible to find. And you wonder why old hands like me prefer our own blogs on our own servers…

TL/DR: I’ll be fine. I’m staying at home for a bit to get the right level of medication in my body, and then I’ll be back out reporting on the real world.

Thursday 18 January, I was rushed into hospital following an unexpected full body seizure/fit and loss of consciousness for 12 minutes. Although discharged the same night with a referral to ‘first fit’ clinic I had a second full body fit the next night and proceeded to spend two nights in hospital for monitoring.

I was released the Sunday afternoon after starting out on a course of sodium valproate to broadly target the seizures – which meant fit number three on the night of Sunday 21st was about a minute long, had no loss of consciousness, and was restricted to the full length of my right leg.

Multiple focal fits followed (restricted to my right leg) as I increased the sodium valproate dose to 300mg twice per day, which first reduced and then stopped the fits, I’ve not had any since Saturday 27 January

Following my visit with the Neurology consultant in the first week of February, I’m now lined up for some more investigations (including an MRI), and I’m in the process of switching to an alternate medication better suited to my symptoms (levetiracetam). The next two weeks will be all about switching over safely, and getting medication and body back in balance. Given the number and type of fits in close succession, there’s no question on the diagnosis.

I have epilepsy.

And once the medications are all balanced, there’s no reason I won’t be getting back on with life as before.

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