It’s coming up on six weeks since my last ‘full body’ seizures and ‘just the leg’ tonic clonic seizures. Things are going well.
As I noted in my last post on the subject, I have been diagnosed with epilepsy and there’s been nothing since to suggest otherwise. What’s not know yet is what triggers my brain into electrical overload, and that may never be known unless the seizures start up again (something I’d like to avoid). In general my Doctor says I’ve to avoid alcohol, keep to regular sleep patterns, and avoid getting over-tired.
What is not a trigger is ‘bright flashing lights.’ Although this is the classic epilepsy thing only three percent of those diagnosed with epilepsy have photo-sensitivity. If the strobes, lights, pyro, and projection effects at Norway’s Melodi Grand Prix selection show for the Eurovision Song Contest failed to trigger me, I doubt anything visual will. Last weekend’s trip to that show allowed me to road-test the modifications my body has made, and all seems to be in order.
That said my enforced rest has meant that I have lost a lot of stamina, my right leg is weaker because of the twitching and seizures that it suffered, and my left arm is still recovering from secondary injuries. There are some side-effects from the anti-seizure medication (Keppra/Levetiracetam), including fatigue and a touch of vertigo. As my body gets used to the medication I’m expecting the effects to continue to diminish.
Up next are a few more short trips to cover some conferences and music events during March and April. I expect to be match fit to join the ESC Insight team in Lisbon to cover the Eurovision Song Contest in May.
By all means ask how I am and how things are going if we meet, I’m happy to talk about this. Just give me a little bit longer to walk anywhere and I’m not going to be staying out late.
You’ll find a lot more information at Epilepsy Scotland, including first aid advice on what to do if you are with anyone when they have a seizure.